There’s no getting around it . . . I’m disabled.
Come February, it will be 3 years since my lower right leg was amputated after a sugar-driven infection polluted my body and it all came tumbling down.
You can read previous posts about all that if you wish, so I’m not going into
it here.
As far as disabilities go, I’m pretty lucky. I have a
prosthesis and manage to get around moderately well, but with some limitations, though I never was the
most nimble person in the world. (Don’t laugh those who know me.) Stairs suck
for me, and my balance isn’t very good . . . that fake leg just doesn’t adjust
to imbalance the same way a real foot and lower leg do, making constant little
adjustments that keep us stable. You can’t feel exactly where the foot of the
prosthesis is.
But that’s OK. It could have been worse, and my limitations
are nowhere as serious as many people’s.
A couple of weeks ago, I attended a weekend event and took my wheelchair
with me for the first time since I lost my leg. I usually get around on
crutches, and sometimes a cane. But since I wasn’t familiar with the location
and didn’t know how far it was from place to place at the event, I packed the
chair into the back of my Jeep, and was glad I did.
It’s often very comforting to do these new things with
people who know you. The friend who met me at the event happens to be very
protective and is constantly aware of not only her surroundings, but mine as
well, since she’s known me for years and went through the whole amputation
issue with me. I used the wheelchair chair to get around and she pushed me frequently.
When I said afterwards that I felt bad about that and maybe
we shouldn’t have used the chair so much, she disagreed (rather forcefully I
must add), saying she knew that in the chair I was safe getting around and less
likely to stumble, get fatigued or get bumped around in crowds. Since the hotel
(and event venue) had lots of carpeted rooms and hallways, a wheelchair is kind
of like mucking through mud, and I was surprised at how tiring that could be .
. . and how slow moving it sometimes made me. Her “cone of protection” and aid
was invaluable. That's something to keep in mind if you are headed somewhere or you
have a disabled friend you’re meeting somewhere.
Different people react differently to those with
disabilities. Some of my views changed a bit years ago while working in New
York when I managed a group of marketing communications writers at a financial
firm. One of them was a paraplegic and confined to a chair. Watching him
overcome obstacle after obstacle . . . stairs, steps, curbs, narrow entries and
space between tables at restaurants was an eye opener. Obstacles and hurdles
everywhere. I used to wonder if laws and rules on accessibility were too
burdensome or overreaching. That experienced changed my mind. I stopped
wondering if it was worth cutting all those curbs for easier access, and I
applaud The New York Times for noting
accessibility in its restaurant reviews.
Now that I need to pay better attention to entrances and
such, it’s even more important to be aware of where I’m going. I may love bed
and breakfast spots in old Victorian homes, but they are pretty much scratched
off my list in favor of more modern . . . and accessible . . . hotels. My
friends and family scout locations for me at times when they go somewhere, and
if I’m invited out, I always ask if the place is accessible . . . If they’re
not sure, I call the restaurant. Again, chain places are usually easy in and
out, but a lot of places aren’t. For me, if there are stairs, a good handrail
is important . . . For some people, good access in a rest room is key so they
can maneuver a chair easily in the bathroom and into a stall.
A recent trip out to a dinner proved the point . . . I was
told the restaurant was accessible, but it really wasn’t . . . I brought my
cane and left the crutches at home, which (as I was warned beforehand and
learned for myself when I arrived) was a bad plan since I was unfamiliar with
the place. There were some 8 steps up to the hostess station after entering
(the rest room was at that level), and the area where the group I was joining was gathered
was down 8 steps . . . “Accessible” was that the lower dining area could be entered from a ramp and entrance at the rear of the building. So I drove around back and went in,
but someone confined to a chair wouldn’t have had access to the rest rooms from
that lower level.
Now I call the restaurant to be sure.
As I said, different reactions from different people. Be
aware if you have some challenges getting around that not everyone pays attention
to those around them. You may get jostled or bumped, or people may not see you
as readily if you’re in a wheelchair below their normal line of sight. Not all
doors are easy to open, and sometimes people will try to scoot through before
you or won’t think to hold it open so you can get through. I often wear shorts
so people can see I have a prosthesis (and long pants sometimes get hung up
around the leg base of my fake leg). Staff in most places is very helpful, but
make sure you’re aware of little things like wet floors when you’re maneuvering
round (wet floors and crutches don’t mix very well). Also note the space between tables and down rows of tables because it can be too narrow for a wheelchair, so make a note for a friend if you need to.
I’ll admit the weekend excursion was way out of my comfort
zone . . . I haven’t stayed overnight anywhere but home since I lost my leg
nearly 3 years ago . . . but it turned out very well, both at the hotel and the
event itself. Modern facilities are designed to accommodate people facing
physical challenges . . . call the hotel to double-check on where to enter and
where handicapped parking is located (at this hotel, there was no parking in
front, but plenty of parking in back, where two double doors had push automatic
openers. The front doors, though plenty wide, did not have the openers).
My friends and family know my limitations and my concerns.
If you’re heading somewhere new, don’t be afraid to ask questions before you
get there to make sure you can get in and out and enjoy your visit comfortably.
If you’re worried about something, tell your companions or the staff. Don’t
just tough it out. Likewise, if you need help, ask . . . most people are more
than willing to help you out. Finally, if you find there are issues with
accessibility (for instance a step up to a dining area that doesn’t have a
handrail) mention that to the manager . . . nicely.
A step here and there is no problem for most people, but
could be a major barrier for someone in a wheelchair or with other mobility
issues.
Thanks for telling it like it is.
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